I went to nuerologist a couple weeks ago because my migraines/headaches, dizziness, shaking and horrible muscle/sometimes joint pain was really taking a toll. She thought that this was beyond treatment drug side effects and I may likely have fibromyalgia. I guess 20% of HCV patients develop this and it is often not diagnosed till well after treatment because the symptoms of treatment and fibromyalgia are so similiar... including brain fog!!!!!
fatigue!!!
So she put me on Cymbalta, doing a bit better except have had this horrible scalp pain like someone is pulling my hair and if you touch my scalp it feels bruised... no sign of rash. I looked it up, another sign of fibromyalgia. This is freaking me out (ya I know I freak out a bunch but this treatment has been quite a rollercoaster for me) The thought that some of this brain fog, fatigue and pain may still be with me is not something I want to hear. The research on the link between HCV and fibromyalgia does not seem to give a definite reason as to why but they do have several theories if you search the articles.
Has anyone else dealt with this??? Seriously if 20% of HCV patients develop it, someone out there has to have and be going through this! I feel like I am going to go insane so if there is anyone out there who has developed fibromyalgia, please let me know how you have managed it.
Thanks,
rjs
