I appreciate what you say.
I need to stay connected with other people who have relapsed or were non-responders.
I don't resent anyone who is SVR, but they do inhabit a different world than we do.
Also, some of us may choose very different courses of action.
And that should be O.K.
I am reminded of a woman at church who was so active with the kids and taught at the H.S.
She developed a virulent form of cancer and opted for alternative treatments rather than chemo.
I don't know what stage it was or how far it had spread.
She only lived a few years after diagnosis - her youngest was still a senior in H.S.
I overheard more than a few people saying that she should have done chemo/radiation.
But it was HER choice to make.
Perhaps she wanted quality of life -
rather than suffering through treatments that had little chance of success.
If you've been through the medical mill like I have -
then you know how belittling and dehumanizing it can be at times.
Yes, there are some incredible people out there in health care.
But there are also a lot of exhausted, harried people for whom it's just a job.
In North Dakota Russian German immigrant culture there is the tradition of the brauchere -
This is a pre-Christian healing ritual that involves breathing and chanting.
It has been passed from mother to daughter for thousands of years.
Maybe it's a bunch of hooie, but one thing is interesting -
When all medical options have failed -
Many a terminally-ill rural North Dakotan has called the brauchere.
So there are lots of ways to be effective.
And I refuse to place all my faith and trust in a single approach.
Best - JG